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Bly’s 1887 masterpiece Ten Days in a Mad-House reminds us that the ultimate test for public safety programs for the mentally ill is their impact on the most vulnerable.
My son’s language is made of a bundle of sounds that do not exist in the Spanish that we speak around the Río de la Plata. He repeats syllables he himself invented, he alternates them with onomatopoeias, guttural sounds, and high-pitched shouts. It is an expressive, singing language. I wrote this on Twitter at 6:30 in the morning on a Thursday because Galileo woke me up at 5:30. He does this, madruga (there is no word for “madrugar”, “waking up early in the morning” in English, I want to know why). As I look after him, I open a Word document in my computer. I write a little while I hear “aiuuuh shíii shíiii prrrrrr boio boio seeehhh” and then some whispers, all this accompanied with his rhythmic stimming of patting himself on the chest or drumming on the walls and tables around the house.
My life with Gali goes by like this, between scenes like this one and the passionate kisses and hugs he gives me. This morning everything else is quiet. He brings me an apple for me to cut it for him in four segments. He likes the skin and gnaws the rest, leaving pieces of apples with his bitemarks all around the house. He also brings me a box of rice cookies he doesn’t know how to open. Then he eats them jumping on my bed. He leaves a trace of crumbles. Galileo inhabits the world by leaving evidence of his existence, of his habits, of his way of being in the world.
When we started walking the uncertain road to diagnosis, someone next of kin who is a children’s psychologist with a sort of specialisation in autism informally assessed him. She ruled (diagnosed, prognosed) that he wasn’t autistic, that we shouldn’t ask for the official disability certificate (because “labels” are wrong, she held), and that he should go on Lacanian therapy and music therapy on Zoom —now I think this is a ready-made sentence she just gives in general to anyone.
The most violent intervention in Galileo’s subjectivity is denying his being-disabled in an ableist world and his being-autistic in an allistic world. We, as a culture, have internalised the terror of disability so deep in our minds that we hurry to deny it. We are not willing to accept that what causes us so much angst and dread actually exists, that it is not an imagined ghost. Denying like this, in this delusional way, is an instinct only humans have. It is so human (so stupid) that it is not a survival instinct. When we deny autistic affirmation, we prepare the ground for its annihilation, i.e., for the annihilation of everyone who is autistic. Being autistic isn’t being an imperfect allistic, a not-yet-allistic person. Being disabled isn’t the same as being a flawed abled person. The denial of disability doesn’t amount to affirming an alternative ability, it implies the ableist annihilation of all vulnerability. But when disability is negated, able people do not survive either. We are born and we die in disability. How did it happen that we dare to imagine we can supersede need? (Maybe by the same process by which it is believed that capitalist profits are meant to satisfy human needs).
The instinct of denying disability is not innate, though. It is an intelligent trap designed to break communities apart, to disorganise, to debilitate us: not to make us disabled but to make us unable, powerless. This is how ableism works, de-politicising vulnerability and unease, making disability, at most, an object of pity and compassion, a matter of bad luck, a fate to try to twist and avoid.
***
Galileo’s spoken language has the musical texture of a genre he alone can perform. There was a (short) time when I thought that my role in his life was to be her translator, a mediation between him and the rest of the world. This is impossible for many reasons. The most important of them isn’t that I don’t get him (I don’t), it isn’t that I don’t speak his language (I don’t), or that no one (much less a mother) can or should mediate anyone. The main reason is that Galileo speaks as someone who plays in their instrument a piece that they have composed for themselves.
Sometimes language is comprehensible only insofar as one gets ready to listen to it as if they were in an empty church in front of a little bench where Rostropovich is about to play Bach’s suites with his Duport, and as if he were Bach himself. Then, and only then, we understand that we don’t understand, that we are at the gates of the incomprehensible. When is language more language than when it is spoken so incomprehensibly? The impossibility of interpreting oneself, myself, comes not only from the fact that no one controls or owns language. No one plays their own scores because no one creates their own language. No one, but Galileo and his equals. The autistic non-verbal language is that impossible thing that we try not to talk about when we talk, that we try to drown by talking too much, moving our hands, and writing for example this text. Autistic languages say what can’t be said in any articulated allistic “normal” language. Galileo speaks a language that complements other languages. This language of his is not the opposite of language: it perfects other languages, like music or silence do.
***
Does my son have a mother tongue? Do we speak to each other as mother and child? What do we tell each other when we chat? My son’s autism and his magic words lend me a whole new vocabulary for my own neurodiversity, a new and authentic view on my severe misophonia, hyperacusis, and hyperosmia, and on my life-long inability to grasp the majority of the rules of interpersonal relationships, among other things I thought were personal flaws that made me inferior. I won’t mask it anymore. I won’t keep it a secret anymore. Now I know how to talk about it, now I have names to name it. Maybe he will never speak his mother tongue or any other “normal” language, but he has taught me to speak a language in which I now can say what I couldn’t formulate in an allistic alien tongue. Stripping me of all the allistic and ableist expectations that have shaped the way I was meant to raise my children has liberated me from the suffering of trying to meet them myself. The truly difficult thing, besides raising an autistic child in an allistic world, besides being a non-verbal autistic child in an ableist world, is how to de-internalise all this life-long inferiorisation.
But I know he will tell me how.
The writer has asked to remain anonymous.
History repeats itself with the governor’s attack on Florida’s higher ed
In 1956 a Florida Legislative Investigation Committee, known as the John’s Committee, was created as a reaction to Brown v. Board of Education and modeled on the efforts of Joseph McCarthy to root out Communists. The John’s Committee looked for evidence to connect civil rights groups, like the NAACP, to communism. When these efforts failed, the committee shifted their focus to target and remove homosexuals and the “extent of [their] infiltration into agencies supported by state funds.” Suspected homosexuals, both faculty and students, were interrogated, outed, and fired at a time when sodomy was illegal in the state. The campaign ruined the careers and destroyed the lives of many ensnared in it, both falsely accused straight and homosexual. The John’s committee also attacked academic freedom by singling out faculty for such “offenses” as the perceived discrimination against male students, teaching evolution, and assigning books they deemed “obscene.” If you’ve been following along with what Governor Ron DeSantis and the Republican legislature are doing in Florida, this should all sound eerily familiar.
It is no secret that Governor Ron DeSantis has declared war on education in Florida through authoritarian tactics targeting curriculum from pre-K to higher education. From book bans to the “Don’t Say Gay” bill, he has k-12 teachers removing and covering up books to avoid felony charges and hiding pictures of their spouses to avoid termination. He forced university instructors to return to the classroom during the Delta variant surge, and students were asked to report non-compliance (virtual teaching) through a “course concern” button added to a phone app that was designed to report tips to the police, make emergency calls, and other functions that “improve their personal safety and security.” The Stop W.O.K.E. Act prohibits teaching any topic that might make students feel guilty based on race, color, national origin, or sex. He has declared war on Critical Race Theory (a concept he cannot even define) and asked over 2 million state college/university faculty, staff, and students to complete a survey that all experts agree would not clear the Institution Review Board’s process that ensures the protection of participants in a research study, to suss out our political leanings. There are many more truly fascist overreaches and mandates coming out of Tallahassee, too many to list. I invite you to listen to the Banished podcast “The Sunshine State Descends into Darkness (Again)” which covers Florida’s all-out assault on academia.
I am a queer contingent faculty member, and the chair of my department’s DEI committee at a very large public university in the state of Florida. I’ve watched as my personal liberties and those of my colleagues have been whittled away. The latest involves reporting of spending and resources used for campus activities that relate to diversity, equity, and inclusion and critical race theory initiatives, and collecting information about the faculty, staff, and students serving on DEI committees. In a separate action, DeSantis has requested information on individuals who have or are receiving gender-affirming treatment at Florida universities. These moves come on the heels of legislation passed to remove our promotion and tenure process from the departments and peer evaluation committees, and allow the university president or board chairman to fire individuals, without due process, clearing the way to fire anyone whose gender, orientation, or political views offend the political party in power.
Great. So now we are putting people on lists, and history has not been kind to people put on lists by authoritarian leaders.
We knew it was coming, but this week department chairs received the request to provide the names, email addresses, and “notes” on all members of departmental diversity and inclusion committees. This opens up the possibility of names (and notes) being submitted without our knowledge. Most of the people who serve on these committees are marginalized in some way and don’t have the protections tenure provides; committee service is always disproportionately assigned to junior faculty, and diversity work is nearly always assigned to the “diversity” members of the unit. We are afraid. What if that guidance on how to draft job announcements to broaden our search pools, or that statement my department chair asked me to write acknowledging the murder of George Floyd, offends the wrong person? Will I lose my job, or something more sinister? What is DeSantis going to do with this information? We do not trust him.
So, what can we do about it? Several groups of faculty are taking action by providing guidance in how to respond to surveys and other data gathering activities by the state, organizing responses to public comment periods, and building an understanding of academic freedom issues and how they impact ALL departments and programs. But these efforts won’t stop the governor and legislature from demanding lists and firings, nor the university administrators from complying. For those outside Florida’s education system who are concerned, please consider donating to Equality Florida or the Florida ACLU. Please also consider joining the American Association of University Professors (AAUP) and please VOTE (and get all of your friends to vote).
DeSantis’s actions and this thinking are a disease, and it is spreading. Other states are watching what is happening and emulating Florida’s efforts to crack down on open discourse and inclusivity in universities. Education in the US is already faltering in international rankings. We need to figure out how to protect our faculty and students, and our academic institutions, before it’s too late.
The post History Repeats Itself: A Guest Post About The Crisis in Florida appeared first on The Professor Is In.
In case you haven't heard, there's a national Adderall shortage. There has in fact been a national Adderall shortage for quite some time now. And there is no fucking end in sight.
Now, in the grand scheme, I suppose that extended-release amphetamine salts are small potatoes compared to cancer, or COVID, or police brutality, or what have you. — Read the rest
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We owe each other more.”
And what is this, but yet another call for “special” academics — the young, women, and people of color — to work for free? To sacrifice themselves, without compensation, in the service of some higher moral imperative of academia? More exploitation in the service of the myth.
Will this never change? Has this myth not done enough damage? Do people never learn? Learn that academia will never love you back? That individual effort CANNOT alter structural failure?
The post It Takes Money to be Moral: Thoughts on Academic Ghosting appeared first on The Professor Is In.
Greenwich University is warning students to prepare themselves for the ‘toxic friendships’ Jane Austen satirises in her novel
Spoilers – but does it matter? Now Jane Austen’s Northanger Abbey is identified by a British university as a vehicle for potentially disturbing “gender stereotypes” and “toxic relationships and friendships”, perhaps the safest way to approach the satire is, if at all, second hand.
The University of Greenwich’s trigger warning (TW) is for undergraduates, but since the original intention of such alerts was to prepare readers for some possible reminder of upsetting experiences, it’s older ones who should be most grateful for this vigilance. Who, after all, is likely to have squeezed in more toxic relationships or suffered more acutely from gender stereotyping? Can such a novel be considered remotely safe for mature women, even those of us too young to have been jilted by an army captain in a Georgian pump room? Plainly, since Greenwich has stuck a warning on it, not.
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Nearly half of U.S. parents surveyed by Pew Research Center said that they were raising their children differently from how they had been raised.
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